This is a "point of contact" for New Zealand families where one or more children have the genetic condition of Osteogenesis Imperfecta (Brittle Bone Disease).
This new and exciting organization has been launched to fill a need that we see for families to be able to network together. Raising a child with Osteogenesis Imperfecta is no easy task, but with the right information and support the journey can be made a little less daunting.
Through our internationally linked site we hope that parents and children alike will find encouragement and support. We plan to keep up to date with the latest medical information as well as help families gain access to the right government support systems. We are so happy that you have found us and encourage you to look further into all that's available here at Fragile Kids.
Zaccari at 2yrs old
Still finds something worth smiling about despite having endured 30+ fractures, 15+ asthma attacks needing oxygen, and two minor operations.
